Nick starts his Occupational Therapy on the 7th-we have been waiting for this for 11 months!! I still cannot believe it took that long! Yesterday I ordered some chelation drops for children and a hair test to determine if he has heavy metals in his system. We have such a difference in him after the clay baths, that we wanted to see if it will get even better after he gets the drops. He is still very much autistic, but I have read that heavy metals can also affect digestion-and Nick has lots of issues there. I am still waiting a response from his doctor about the comprehensive digestion stool analysis-maybe looking further into his digestive system will lead us to more clues about him. As for Nick, well, he is still just our Nick.. :) People still think he is adorable when he goes up to them and plays "hide and seek" from mommy or daddy in the stores.
Wednesday night we did not do much. I went over to the neighbor's for a while and chatted with them-Mike stayed home with the boys. I came back home and spent the last few minutes of 2008 with them. Nick went to bed at his normal time-no sense in having a super cranky 4yr old the next day with everyone else who was tired.
Thursday I went to Safeway and bought more rice milk for Nick since we had run out. I also found some gluten free/lactose free Pedia Sure. Nick loves the regular stuff, and I had not noticed if it was gluten free/lactose free before, so I bought it. He had some of the regular stuff last week, and he also had some pretty narly diarrhea a couple of times-so maybe that was the cause. If so, then I know the poor kid really cannot handle milk. Lactose intolerant maybe??
Friday we took down all our Christmas stuff! I was ready to see it go. Now things are back to normal, and we can get on with 2009. We went and bought some storage cabinets for all the gaming crap that we have(i.e. controllers, games, and the other crap that seems to accumulate with that stuff). We also bought a dresser for Nick! It's only been almost FIVE YEARS since he graced us with his presence-I guess he is here to stay..LOL! Nick was having fun walking beside the cart. I rarely ever let him do this when I am out alone with him; he likes to run and it makes things very difficult. It is almost to the point where he will need one of those leash thingies-he is just getting too tall for the baskets. It is hard to get him in and out of them because his legs are so long. But, when we are all out together, we usually let him walk. After we got all the stuff, we headed to Quizno's for dinner. They are familiar with us there and know Nick. He was enjoying every minute of this and was "silly-talking" the whole time. There really is no other way to describe it-it is Nick's own made up jargon that he does when he is happy. He had two pieces of the Quizno's tape and was in heaven. It felt like we were a normal family. We were eating in peace, and Michael was astonishing us by eating all the hot peppers he could tolerate! We all had a great time!
Saturday, January 03, 2009
Thursday, January 01, 2009
HAPPY NEW YEAR!!
2009 already??!! Where on earth does the time go? I just have a couple of "resolutions"
1. Get more melatonin We ran out last night. I was scraping the bottom of the bottle to get the few drops that remained. Nick continues to wake up in the middle of the night laughing uncontrollably. At least for now, he stays in his room.
2. Get more rice milk Hopefully we can find an open grocery store to get more of this milk.
3. Stop getting toys that speak Spanish Nick got one of those for Christmas. It speaks both English and Spanish. Right now I am listening to "Old Macdonald" in Spanish. Nick barely speaks English-all we need is for him to learn Spanish and start talking to us. I have a feeling he will though. It sounds a lot like his own made up silly-talk that he uses on a daily basis(he says what sounds like "ehnurlygurd")
4. Try to understand Nick more I am talking about inside and out. I want to find out what is going on with his digestive tract, have him tested for heavy metals, and some allergy testing. Even though these things likely did not "cause" him to be autistic, they certainly are not helping him any. Especially his digestive problems. If we can just find out the cause of that problem, it will be a great year. Poor kid is plagued by mushy,loose, or runny stools 90% of the time-something is going on.
As for what "causes" autism-we may never narrow it down to one thing. I think that Nick was autistic from birth. He may have started out seemingly "normal", but on the inside things were already going awry. It is possible that he was never able to tolerate certain things in our environment; and on the surface it initially started as a bad case of eczema. I have since read that eczema originates in the gut. So, that was one thing. Nick also seemed to me like a very "floppy" baby. I could not put my finger on it exactly, but he was not sturdy like Michael was, despite him being bigger. Maybe his body was never able to excrete things like heavy metals-then he gets vaccines; which his already sensitive system just could not handle very well. I think ALL of these combined play a part. Why not? We are a society that has become filled with people who have allergies, irritable bowel syndrome, anxiety, depression, etc. Someone has to wonder if things in our environment are getting to such a toxic point that our bodies cannot handle it? These are just some of the areas my mind wanders to occasionally. I believe all these things could be a factor in this whole autism mystery. But, what do I know? I am just a mother to an autistic child who has been LIVING this disorder for almost five years.
TV. I am sorry, but if TV caused autism, then Nick would be perfectly fine. In fact, Michael would be the one with Classic Autism if that were the case. TV does not cause autism. End. Of. Story. More on autism myths later.
1. Get more melatonin We ran out last night. I was scraping the bottom of the bottle to get the few drops that remained. Nick continues to wake up in the middle of the night laughing uncontrollably. At least for now, he stays in his room.
2. Get more rice milk Hopefully we can find an open grocery store to get more of this milk.
3. Stop getting toys that speak Spanish Nick got one of those for Christmas. It speaks both English and Spanish. Right now I am listening to "Old Macdonald" in Spanish. Nick barely speaks English-all we need is for him to learn Spanish and start talking to us. I have a feeling he will though. It sounds a lot like his own made up silly-talk that he uses on a daily basis(he says what sounds like "ehnurlygurd")
4. Try to understand Nick more I am talking about inside and out. I want to find out what is going on with his digestive tract, have him tested for heavy metals, and some allergy testing. Even though these things likely did not "cause" him to be autistic, they certainly are not helping him any. Especially his digestive problems. If we can just find out the cause of that problem, it will be a great year. Poor kid is plagued by mushy,loose, or runny stools 90% of the time-something is going on.
As for what "causes" autism-we may never narrow it down to one thing. I think that Nick was autistic from birth. He may have started out seemingly "normal", but on the inside things were already going awry. It is possible that he was never able to tolerate certain things in our environment; and on the surface it initially started as a bad case of eczema. I have since read that eczema originates in the gut. So, that was one thing. Nick also seemed to me like a very "floppy" baby. I could not put my finger on it exactly, but he was not sturdy like Michael was, despite him being bigger. Maybe his body was never able to excrete things like heavy metals-then he gets vaccines; which his already sensitive system just could not handle very well. I think ALL of these combined play a part. Why not? We are a society that has become filled with people who have allergies, irritable bowel syndrome, anxiety, depression, etc. Someone has to wonder if things in our environment are getting to such a toxic point that our bodies cannot handle it? These are just some of the areas my mind wanders to occasionally. I believe all these things could be a factor in this whole autism mystery. But, what do I know? I am just a mother to an autistic child who has been LIVING this disorder for almost five years.
TV. I am sorry, but if TV caused autism, then Nick would be perfectly fine. In fact, Michael would be the one with Classic Autism if that were the case. TV does not cause autism. End. Of. Story. More on autism myths later.
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