Saturday, April 17, 2010


I was asked to keep track of any changes in Nick since we started with the chiropractor; so here goes.

The first visit went well. Nick really enjoyed it and seemed very at ease with everything-despite being a little anxious at first. After we got home, Nick was very verbal and laughing and playing outside. Mike asked me what I did to him to make him like that. I said 'Nothing'. Suddenly, Nick passed some gas and headed back to his room stating 'I need a diaper'.

Yesterday, while working with his tutor, Nick's verbal requests were at an all time high. 80%. He has never been that high since starting the program last summer. His tutor showed me the graphs they have been charting of all of his undesirable behaviors. They have dropped. This was also since starting the Risperdal. His slamming doors/hitting/banging have gone down considerably. I have not seem him bang his head in two weeks. Meltdowns have decreased, and the ones he does have he is easily consoled and can get a hold of himself much quicker. Last night in the bath, not only did he play in the tub-be he did not want to get out. He did not scream-but he kept going back every chance he got to get in the water. This is a rather new development-and a welcome one.

Today was his second visit. He said "hi" to the receptionist with some prompts, but left out the "SAY" as in "SAY hi". He simply said "hi". We practiced exchanging some social chit chat, and his responses were the same. He left out the "SAY" in all of them. For someone whose speech is largely echolalic, this is a step in the right direction. He smiled at the doctor, and did not distribute much anxiety this time around. He sat still when the doctor told him to, and even gave the man a high five. Tonight as I was reading him a book; he did hit me. Whether he meant to or not, I stopped and said "What do you say?" and he said "sorry". Usually he would repeat "What do you say?" or "say sorry". But not this time! He answered right away with the correct response!

Have we finally found the right combination?? Nick is getting his personality back. There is no way to describe how this feels. Like we are on top of the world right now.

Wednesday, April 14, 2010

No School Today.......

At least, not for Nick. They have a half day today which means that his schedule did a flip-flop. Literally. ON half days, someone had the bright idea to have the kindergartners flip their schedules around. For example: Nick is in the PM kindergarten class-which means his school starts at noon. On some half days he is actually off. However, on half days like today-he was supposed to be at school at 8am. Well, the school does not tell the transportation people this(Brillaint huh??) and it is confusing for all to say the least. Not to mention, it completely disrupts the whole morning routine we have established since the beginning of the school year. I swear, sometimes it seems the 'typical' people need to start using their brains.

Nick has another chiropractor appointment today though-so being out of school is actually convenient. We will find out what they saw on X-rays and develop a treatment plan. Not sure if they will do his first adjustment today or have us come back, but I am excited to be doing something. It might help, it might not. But we will try anyway. His appointment is at 4pm, and depending on what is going on tonight I might do another post to update what happened. I told Nick last night that there would be "no bus" today and that he would be going to the doctor. He started to get a little anxious and started whimpering. He then promptly told me "Goodnight Nick". :)

Update: Nick had his very first 'adjustment' today. Nothing big. Just more of a vibrating hammer type thing that was used on different parts of his head,neck,and spine. He seemed to really enjoy it. Nothing out of the normal as far as behavior wise so far. Although, I will be keeping track of his progress. We have another appointment on Friday, and the doc wants to see him at least twice a week. So, that will be another thing on top of everything else we are doing. I swear, will it never end? Of course I already know the answer to that question.

Sunday, April 11, 2010

Why Such a Stigma??

As if this life with autism was not enough, it seems that there is a huge stigma (ok, not SEEMS, there is) added to moms that have to use medications. We are looked down upon, criticized for our decisions(did not go GFCF, did not try the right supplements, gave up too soon) even more harshly than others. Let me just get one thing straight. I never, ever, thought that 2 years ago my son would be on medication. We DID cut out diary, ate organic food, gave him Cod Liver Oil, DHEA supplements, vitamins, we tried clay baths to help him 'detox', and I am sure I am missing some other stuff we did. We even tried some supplements that were supposed to calm him and make him think clearer. What happened? He went psychotic. He was WORSE. He peeled off the baseboard in the bathroom, he tore through the drywall, peeled off the paint, and destroyed nearly every door in our old house from the constant banging. Despite all of the above mentioned treatments, he was still non-verbal autistic. The only supplement that offered reprieve was his melatonin-at least he could sleep through the night. However, as time wore on and he got older, his stimming got worse, and it seemed like we would have these manic episodes that would last days. I don't think anyone living in our house at the time of these episodes would doubted us. It was horrible. It was not a decision we took lightly-and I don't think ANY parent does. But, not all autism is 'recovered' through special diets or supplements, and we are doing what has worked best to date. That does not mean that we are now totally resigned to medications to help-we are not. We are still pursuing chiropractic care, and possibly some other forms of natural therapy. I am trying to go with what Nick really likes-and that is pressure. We are in the mindset of doing what works for my son. Why is there such a stigma with meds? If it works, then it works for that child. Moms should not begrudge other moms for doing what works for their kids. We already have enough to deal with, we should all be supporting one another in this journey-not tearing each other apart.

Ok, off my soapbox now. We had a great weekend (and this post was NOT directed at anyone-just general) and I think we even made some new friends! Nick spent all day outside today. Barefoot, and just immersed in doing whatever came to his little mind. He was happy, and we heard lots of his silly talk. I went to Barnes and Noble to order the new book by Susan Senator. She was nice enough to include some stories from families, and we just happened to be one of them. The book is called "The Autism Mom's Survival Guide". Once I get it, I will post some more about it. I loved her first book "Making Peace with Autism". That was the first book where I could relate. Up til then, the kids I had read about all appeared to be higher functioning, or offered hope of miracle like 'cures' through special diets and such. This book was REAL. She was telling it how it really is, and how she finally came to accept autism. I often wonder why these talk shows cannot have someone like her on them? I am sick of certain celebrities being looked upon as autism experts. I would love to see someone like Dr. Temple Grandin, or Susan Senator, or Donna Williams, or Dr. Simon-Barron-Cohen....just ONCE! Try giving those people some quality air time...not those celebrities who shall remain nameless.

Wow, this turned into some sort of a vent! I am watching my darling 6yr old propel himself around the dining room table by sitting in his little Tonka Dumptruck. He is flapping his ears and holding a Spiderman sticker, and jibbering to himself. He is happy, and so are we. Isn't that what it is all about?