Sunday, February 18, 2007

Why ask for opinions????

When you don't want to hear them?? I am perplexed by this. About a year ago, I went to a bulletin board after doing some research on the internet regarding Nicholas. I laid it all out, what he was doing,what he was not, and asked for people's opinions--not just any person,but parents of kids with autism. They told me what in a sense I already knew. Based from their experience and what I posted,it sounded like Nick in fact had autism. They told me what I should do next, and offered support. I have even met with some of these ladies face to face. I went there,asking their opinions on my son, and was ready to face the cold, hard, truth.

Fast forward to a year later, and a similiar post from a mother shows up again. She is asking about her daughter,asking what we think. Her daughter has many delays, but she says that she meets the milestones "eventually". She sounded a lot like Nicholas. We offered our opinions, and said that it does sound like an autism spectrum disorder. A couple of people also told her that it sounded like she was in denial about her daughter--which in truth, it did. The mother ended up being very upset and got mad that our opinions suggested autism. My question is WHY did they even ask in the first place?? Obviously they were concerned,but mention something of a disorder,and they go crazy. I guess I just dont get it. By the time I went to that board, I had already had a sneaking suspicion that we were dealing with either ASD or some sort of sensory disorder. Maybe I was just never in that "denial" phase. I am glad I was not-because it would have delayed Nicholas getting the help he needs so much. Maybe we had learned from Michael's whole ordeal, that not knowing what is wrong is just more worrisome, and more stressful. I would rather know what is wrong,so that we can learn how to help our kids. Maybe I am just "wired" that way!

1 comment:

Anonymous said...

Hi Amy
I was directed to your blog by another parent, as she provided a personal story for inclusion at

I'm creating this site in my spare time to help parents learn more about home-based interventions such as RDI. Would you mind if I reproduced part of your blog as a personal story for other parents to read? I would then provide a live link so interested readers could learn more.

If that's fine, I'd just need to know if you'd like names changed, and if you'd prefer to hold copyright, or keep it under the GNU Free License Agreement.

Many thanks for sharing your story with others, I think it is in sharing that we can all make a better future for our kids!

Barry Morris