It is soccer season again, and I find myself having mixed emotions. I love watching Michael play and practice, but it can be a painful reminder of how our lives are so much different. When you see a child younger than yours who is able to play a simple card game with his mom, or one who tries in vain to interact with Nick...but instead he walks away still spinning the blades from a long lost toy helicopter, completely ignoring all attempts to get his attention. Do their parents even realize what they have? Do they take for granted that they hear "Mom" a hundred times a day? Or that their child can tell them a story, or even tell on their brother/sister? Do they realize how I long to hear those things from Nick? That just even pointing to his nose takes weeks of repetition and numerous rewards. Don't get me wrong, I realize that we could have it so much worse, but it pains us to see how far behind our little man is.
"Nick is nearly five, but he babbles like a 15 month old" I said to Mike today. "But he IS babbling." he replied positively. That seems to be how things are with us. When I get down in one of my moods, he points out the positive things. I do the same when he gets down. Thank goodness we never seem to have these episodes at the same time..LOL!
Nick has a way of making me laugh at all the right times. Just as I finished typing this post, Nick grabbed Michael's juice box and finished it off! The best thing was HE DRANK FROM A STRAW and did not spill a drop!! Nick, you made mommy laugh tonight. Thank you sweet boy!
6 comments:
Oh Amy, as a mom to a PKU kiddo, I too sometimes want to smack people upside the head.
This past Tuesday was our usual, every 6-month appointment with his genetics doc, which means a day spent at the Children's Hospital. I feel like such a fraud when I leave there.
Yes, it can always be worse. But I am with you, some days I find myself thinking, why can't it be better?
Hugs to you RAB sister.
Em
Thanks Em. It is on those days that I find myself getting down. I just wish we could be like any other family somedays; and then somedays I feel we are really fortunate because we KNOW what really matters, and we celebrate the smallest accomplishments...no word is taken for granted. KWIM? His re-evaluation is coming up next week and there is always words written/said that just cut right through me.
Hugs for next week's appointment. Come here and vent away!
Em
AwAmy-- I am so sorry. I haven't really tought of soccer season in that way. Thank you for reminding me of the blessings I have and that everything is not as it seems with others.
Michelle (DrBoyMom)
I am counting my blessings as well. I mean, yeah, we feel like outsiders at soccer, but when I see some of the kids at Nick and Michael's school, I feel very lucky. I am sure it will be hard at his eval. to hear some words they use to describe him; but with such good support from family and friends we will get through.
I know how you feel...
(((Hugs)))
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